Patient and family experiences of lysosomal storage diseases in Canada: A qualitative interview study
Abstract Canadian patients and families affected by rare genetic lysosomal storage diseases (LSDs) suffer from numerous challenges related to disease management, including issues navigating healthcare and social support services, access to orphan drugs, and intensive treatment regimens. These challe...
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| Principais autores: | , |
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| 格式: | Artigo |
| 語言: | Inglês |
| 出版: |
Wiley
2024-03-01
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| 叢編: | JIMD Reports |
| 主題: | |
| 在線閱讀: | https://doi.org/10.1002/jmd2.12403 |
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