Utility of Genetic Testing from the Perspective of Parents/Caregivers: A Scoping Review

In genomics, perceived and personal utility have been proposed as constructs of value that include the subjective meanings and uses of genetic testing. Precisely what constitutes these constructs of utility and how they vary by stakeholder perspective remains unresolved. To advance methods for measu...

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Principais autores:	Robin Z. Hayeems, Stephanie Luca, Daniel Assamad, Ayushi Bhatt, Wendy J. Ungar
Formato:	Artigo
Idioma:	Inglês
Publicado:	MDPI AG 2021-03-01
Series:	Children
Assuntos:	personal and perceived utility genetic testing pediatrics parent/caregiver perspective patient reported outcome measure
Acceso en liña:	https://www.mdpi.com/2227-9067/8/4/259
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