A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

Abstract Background With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands (the first person in a family in whom a genetic predisposition is identified) are asked to inform at-risk re...

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Hlavní autoři:	Lieke M. van den Heuvel, Els L. M. Maeckelberghe, M. Corrette Ploem, Imke Christiaans
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	BMC 2021-11-01
Edice:	BMC Medical Ethics
Témata:	Family communication research Genetic risk Duty to warn Informing at-risk relatives
On-line přístup:	https://doi.org/10.1186/s12910-021-00721-4
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