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Understanding the impact of pediatric single large‐scale mtDNA deletion syndromes on caregivers: Burdens and challenges

Abstract Single large‐scale mitochondrial deletion syndromes (SLSMDS) are ultra‐rare, progressive multi‐system diseases that make children largely dependent on their caregivers for both medical and non‐medical needs. Yet, few studies have examined the burden felt among caregivers. As part of a large...

Whakaahuatanga katoa

I tiakina i:
Ngā taipitopito rārangi puna kōrero
Ngā kaituhi matua: McKenzie Chappell, Sumit Parikh, Elizabeth Reynolds
Hōputu: Artigo
Reo:Inglês
I whakaputaina: Wiley 2023-09-01
Rangatū:JIMD Reports
Ngā marau:
Urunga tuihono:https://doi.org/10.1002/jmd2.12385
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