Qualitative needs assessment of financial impact on caregivers of children living with rare diseases
Purpose: Families caring for children with rare diseases face sustained financial, emotional, and systemic challenges, yet cross-disease, cross-regional data remain limited. This study investigates the financial impact of caregiving from the perspective of rare disease advocacy organisations, rather...
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| Principais autores: | , |
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| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Elsevier
2026-01-01
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| Colecção: | Rare |
| Assuntos: | |
| Acesso em linha: | http://www.sciencedirect.com/science/article/pii/S2950008726000037 |
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