Measuring disease-specific quality of life in pediatric intestinal failure: Development and validation of the PIF-QoL

Background: Research suggests pediatric intestinal failure (PIF) patients experience impaired quality of life (QoL), but no disease-specific instrument has been available to assess this patient population. The aim of this study was to develop and validate a PIF-specific QoL assessment tool. Methods:...

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Autors principals:	Marie L. Neumann, Amy Ladner, Jessica Y. Allen, Swapna Kakani, Meghan H. Rauen, David F. Mercer
Format:	Artigo
Idioma:	Inglês
Publicat:	Elsevier 2025-10-01
Col·lecció:	Intestinal Failure
Matèries:	Pediatric Intestinal failure Short bowel syndrome Quality of life Patient-reported outcomes measure (PROM) Questionnaire
Accés en línia:	http://www.sciencedirect.com/science/article/pii/S2950456225002891
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