Online 1-session Empowered Relief in Marfan syndrome and related diseases: a single-arm feasibility and pilot efficacy study

Abstract Marfan syndrome is a rare and often painful genetic disorder that affects connective tissue, and multiple organs and systems. We conducted a non-randomized feasibility and efficacy study of Empowered Relief, an evidence-based 1-session pain relief skills class, delivered online to a single...

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Detalhes bibliográficos

Principais autores:	Luzmercy Perez, Paige Palenski, Emma Adair Monson, Lorena Contreras, Brittany Dorsonne, Arayam Y. Hailu, Kendall Gedeon, Hannah Boyd, Maisa Ziadni, Ashley Herrick, Andrea Friedman, Jiapeng Xu, Juliette Hong, Lu Tian, Beth D. Darnall
Formato:	Artigo
Idioma:	Inglês
Publicado em:	Nature Portfolio 2026-01-01
coleção:	Scientific Reports
Assuntos:	Chronic pain Behavioral health Treatment Rare disease Ehlers-Danlos Loeys-Dietz
Acesso em linha:	https://doi.org/10.1038/s41598-025-29943-x
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