Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

Abstract Background Rare diseases may be life-threatening or chronically debilitating conditions. Patient care needs are often complex and challenging to coordinate and deliver effectively. Rare diseases and their clinical management may therefore substantially impact on patients’ health-related qua...

Whakaahuatanga katoa

Ngā taipitopito rārangi puna kōrero

Ngā kaituhi matua:	Olalekan Lee Aiyegbusi, Fatima Isa, Derek Kyte, Tanya Pankhurst, Larissa Kerecuk, James Ferguson, Graham Lipkin, Melanie Calvert
Hōputu:	Artigo
Reo:	Inglês
I whakaputaina:	BMC 2020-06-01
Rangatū:	Health and Quality of Life Outcomes
Ngā marau:	Rare diseases Rare disorders Patient involvement Qualitative study Health-related quality of life HRQOL
Urunga tuihono:	http://link.springer.com/article/10.1186/s12955-020-01438-5
Ngā Tūtohu:	Tāpirihia he Tūtohu Kāore He Tūtohu, Me noho koe te mea tuatahi ki te tūtohu i tēnei pūkete!