A personalized home-based exercise training program in children with Marfan and Loeys-Dietz syndromes improves aerobic exercise capacity and health-related quality of life

Abstract Background Children and adolescents with Marfan (MFS) and Loeys-Dietz (LDS) syndromes report chronic fatigue and reduced physical endurance, which significantly impact their health-related quality of life (HRQoL). We hypothesized that a tailored physical training program could improve these...

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Bibliografiske detaljer

Principais autores:	Thomas Edouard, Fernanda Bajanca, Clara Flumian, Fabrice Marion-Latard, Clément Pradayrol, Aitor Guitarte, Maud Langeois, Philippe Khau Van Kien, Armelle Yart, Françoise Auriol, Eric Garrigue, Yves Dulac
Format:	Artigo
Sprog:	Inglês
Udgivet:	BMC 2026-02-01
Serier:	Orphanet Journal of Rare Diseases
Fag:	Marfan syndrome Loeys-Dietz syndrome Personalized home-based training program Aerobic exercise capacity Peak oxygen consumption Ventilatory anaerobic threshold
Online adgang:	https://doi.org/10.1186/s13023-026-04234-4
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