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Epidemiology and patient journey of Rett syndrome in the United States: a real-world evidence study

Abstract Background Rett syndrome (RTT) is a neurodevelopmental disorder that almost exclusively affects females and is associated with high clinical burden. However, literature characterizing the real-world journey of patients with RTT is limited. This study provided an overview of the epidemiology...

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Principais autores: Damian May, Kalé Kponee-Shovein, Malena Mahendran, Nathaniel Downes, Kristy Sheng, Patrick Lefebvre, Wendy Y. Cheng
Format: Artigo
Sprog:Inglês
Udgivet: BMC 2023-04-01
Serier:BMC Neurology
Fag:
Clinical manifestations
Costs
Economic burden
Healthcare resource utilization
Incidence
Prevalence
Online adgang:https://doi.org/10.1186/s12883-023-03181-y
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