Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania

Objectives To provide lay information about genetics and sickle cell disease (SCD) and to identify and address ethical issues concerning the Sickle Cell Disease Genomics of Africa Network covering autonomy and research decision-making, risk of SCD complications and organ damage, returning of genomic...

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Hlavní autoři:	Ellis Owusu-Dabo, Mahmoud U Sani, David Nana Adjei, Nicola Mulder, Gordon Awandare, Vivian Paintsil, Obiageli Nnodu, Jonathan Stiles, Kofi A Anie, Solomon Fiifi Ofori-Acquah, Julie Makani, Edeghonghon Olayemi, Titilope Adenike Adeyemo, Najibah Aliyu Galadanci, Furahini Tluway, Peter Mensah, Joseph Sarfo-Antwi, Henry Nwokobia, Awwal Gambo, Adebola Benjamin, Arafa Salim, Judith A Osae-Larbi, Amma Benneh-Akwasi Kuma, Anita Ghansah, Catherine Segbefia, Solomon F Ofori-Acquah, William Kudzi, Vivian Painstil, Aisha Kuliya-Gwarzo, Adullahi Shehu, Baba Musa, Mahmoud Sani, Najibah Aliyu Galandanci, Alashle Abimiku, Ameh Adeyefa, Obiageli E. Nnodu, Michael Akinsete, Olufunto Kalejaiye, Titilope Adeyemo, Flora Ndobho, Josephine Mgaya, Siana Nkya, Flordeliza Villanueva, Samit Ghosh, Solomon Ofori-Acquah, Ryan Minster
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	BMJ Publishing Group 2021-07-01
Edice:	BMJ Open
On-line přístup:	https://bmjopen.bmj.com/content/11/7/e048208.full
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