How do people with neurofibromatosis type 1 (the forgotten victims) live? A grounded theory study
Abstract Background Neurofibromatosis type I (NF1) is a rare genetic disorder, associated with some physical symptoms including spots and tiny bumps on the skin, and internal organ involvement. People suffering from neurofibromatosis face various challenges in their daily lives. However, there is li...
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| Principais autores: | , , , |
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| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Wiley
2022-04-01
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| coleção: | Health Expectations |
| Assuntos: | |
| Acesso em linha: | https://doi.org/10.1111/hex.13413 |
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