The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network

Por Merkel, Peter A., Manion, Michele, Gopal-Srivastava, Rashmi, Groft, Stephen, Jinnah, H. A., Robertson, David, Krischer, Jeffrey P.
Publicado no Orphanet J Rare Dis (2016)

Diagnosing primary ciliary dyskinesia: an international patient perspective

Por Behan, Laura, Dunn Galvin, Audrey, Rubbo, Bruna, Masefield, Sarah, Copeland, Fiona, Manion, Michele, Rindlisbacher, Bernhard, Redfern, Beatrice, Lucas, Jane S.
Publicado no Eur Respir J (2016)

Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review

Por Shapiro, Adam J., Zariwala, Maimoona A., Ferkol, Thomas, Davis, Stephanie D., Sagel, Scott D., Dell, Sharon D., Rosenfeld, Margaret, Olivier, Kenneth N., Milla, Carlos, Daniel, Sam J., Kimple, Adam J., Manion, Michele, Knowles, Michael R., Leigh, Margaret W.
Publicado no Pediatr Pulmonol (2015)

Diagnosis of Primary Ciliary Dyskinesia. An Official American Thoracic Society Clinical Practice Guideline

Por Shapiro, Adam J., Davis, Stephanie D., Polineni, Deepika, Manion, Michele, Rosenfeld, Margaret, Dell, Sharon D., Chilvers, Mark A., Ferkol, Thomas W., Zariwala, Maimoona A., Sagel, Scott D., Josephson, Maureen, Morgan, Lucy, Yilmaz, Ozge, Olivier, Kenneth N., Milla, Carlos, Pittman, Jessica E., Daniels, M. Leigh Anne, Jones, Marcus Herbert, Janahi, Ibrahim A., Ware, Stephanie M., Daniel, Sam J., Cooper, Matthew L., Nogee, Lawrence M., Anton, Billy, Eastvold, Tori, Ehrne, Lynn, Guadagno, Elena, Knowles, Michael R., Leigh, Margaret W.
Publicado no Am J Respir Crit Care Med (2018)