A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry

Por Mazzucato, Monica, Visonà Dalla Pozza, Laura, Manea, Silvia, Minichiello, Cinzia, Facchin, Paola
Publicado em 2014

The Epidemiology of Transition into Adulthood of Rare Diseases Patients: Results from a Population-Based Registry

Por Mazzucato, Monica, Visonà Dalla Pozza, Laura, Minichiello, Cinzia, Manea, Silvia, Barbieri, Sara, Toto, Ema, Vianello, Andrea, Facchin, Paola
Publicado no Int J Environ Res Public Health (2018)