Genomic and stem cell policy issues: more alike than different?

Por Majumder, Mary A
Publicado em 2011

Ethical Dilemmas Surrounding the Use of Ventricular Assist Devices in Supporting Patients with End-Stage Organ Dysfunction

Por Bruce, Courtenay R., Brody, Baruch, Majumder, Mary A.
Publicado em 2013

Persistent Confusion and Controversy Surrounding Gene Patents

Por Guerrini, Christi J., Majumder, Mary A., McGuire, Amy L.
Publicado no Nat Biotechnol (2016)

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing

Por Majumder, Mary A., Cook-Deegan, Robert, McGuire, Amy L.
Publicado no PLoS Biol (2016)

Chapter 2: MEDICAL INFORMATION COMMONS: CONCEPTUAL, LEGAL AND ETHICAL CONSIDERATIONS FOR STAKEHOLDERS

Por Geary, Janis, Majumder, Mary A., Robinson, Jill Oliver, Guerrini, Christi, Cook-Deegan, Robert
Publicado em 2022-01-11

Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections

Por Moore, Quianta L., Paul, Mary E., McGuire, Amy L., Majumder, Mary A.
Publicado no Am J Public Health (2016)

Policy for citizen science

Por Guerrini, Christi J., Majumder, Mary A., Lewellyn, Meaganne J., McGuire, Amy L.
Publicado no Science (2018)

The Role of Participants in a Medical Information Commons

Por Majumder, Mary A., Bollinger, Juli M., Villanueva, Angela G., Deverka, Patricia A., Koenig, Barbara A.
Publicado no J Law Med Ethics (2019)

Constraints on gene patent protection fuel secrecy concerns: a qualitative study

Por Guerrini, Christi J, McGuire, Amy L, Majumder, Mary A, Bollinger, Juli M, Rowan, Paul J
Publicado no J Law Biosci (2017)

Sharing Data under the 21st Century Cures Act

Por Majumder, Mary A., Guerrini, Christi J., Bollinger, Juli M., Cook-Deegan, Robert, McGuire, Amy L.
Publicado no Genet Med (2017)

Genomic Data-Sharing Practices

Por Villanueva, Angela G., Cook-Deegan, Robert, Robinson, Jill O., McGuire, Amy L., Majumder, Mary A.
Publicado no J Law Med Ethics (2019)

One technology, multiple applications: developing context-specific NGS policy

Por Curnutte, Margaret Ann, Frumovitz, Karen L., Majumder, Mary A., McGuire, Amy, Bollinger, Juli M, Cook-Deegan, Robert M
Publicado no Nat Biotechnol (2016)

Taking DNA from the dead

Por McGuire, Amy L., Majumder, Mary A., Halpern, Scott D., Swindell, J. S., Yaeger, Laura V., Gibbs, Richard A., Wheeler, Thomas M.
Publicado em 2010

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

Por Pereira, Stacey, Robinson, Jill Oliver, Peoples, Hayley A., Gutierrez, Amanda M., Majumder, Mary A., McGuire, Amy L., Rothstein, Mark A.
Publicado no PLoS One (2017)

Characterizing the Biomedical Data-Sharing Landscape

Por Villanueva, Angela G., Cook-Deegan, Robert, Koenig, Barbara A., Deverka, Patricia A., Versalovic, Erika, McGuire, Amy L., Majumder, Mary A.
Publicado no J Law Med Ethics (2019)

What is a Medical Information Commons?

Por Bollinger, Juli M., Zuk, Peter D., Majumder, Mary A., Versalovic, Erika, Villanueva, Angela G., Hsu, Rebecca L., McGuire, Amy L., Cook-Deegan, Robert
Publicado no J Law Med Ethics (2019)

Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons

Por Deverka, Patricia A., Gilmore, Dierdre, Richmond, Jennifer, Smith, Zachary, Mangrum, Rikki, Koenig, Barbara A., Cook-Deegan, Robert, Villanueva, Angela G., Majumder, Mary A., McGuire, Amy L.
Publicado no J Law Med Ethics (2019)

Exome Sequencing Disclosures in Pediatric Cancer Care: Patterns of Communication among Oncologists, Genetic Counselors, and Parents

Por Scollon, Sarah, Majumder, Mary A, Bergstrom, Katie, Wang, Tao, McGuire, Amy L., Robinson, Jill O., Gutierrez, Amanda M., Lee, Caroline H., Hilsenbeck, Susan G., Plon, Sharon E., Parsons, D. Williams, Street, Richard L.
Publicado no Patient Educ Couns (2018)

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons

Por McGuire, Amy L., Majumder, Mary A., Villanueva, Angela G., Bardill, Jessica, Bollinger, Juli M., Boerwinkle, Eric, Bubela, Tania, Deverka, Patricia A., Evans, Barbara J., Garrison, Nanibaa’ A., Glazer, David, Goldstein, Melissa M., Greely, Henry T., Kahn, Scott D., Knoppers, Bartha M., Koenig, Barbara A., Lambright, J. Mark, Mattison, John E., O’Donnell, Christopher, Rai, Arti K., Rodriguez, Laura L., Simoncelli, Tania, Terry, Sharon F., Thorogood, Adrian M., Watson, Michael S., Wilbanks, John T., Cook-Deegan, Robert
Publicado no J Law Med Ethics (2019)

Creating a data resource: what will it take to build a medical information commons?

Por Deverka, Patricia A., Majumder, Mary A., Villanueva, Angela G., Anderson, Margaret, Bakker, Annette C., Bardill, Jessica, Boerwinkle, Eric, Bubela, Tania, Evans, Barbara J., Garrison, Nanibaa’ A., Gibbs, Richard A., Gentleman, Robert, Glazer, David, Goldstein, Melissa M., Greely, Hank, Harris, Crane, Knoppers, Bartha M., Koenig, Barbara A., Kohane, Isaac S., La Rosa, Salvatore, Mattison, John, O’Donnell, Christopher J., Rai, Arti K., Rehm, Heidi L., Rodriguez, Laura L., Shelton, Robert, Simoncelli, Tania, Terry, Sharon F., Watson, Michael S., Wilbanks, John, Cook-Deegan, Robert, McGuire, Amy L.
Publicado no Genome Med (2017)