Preserving the owner’s autonomy in networks of patient registries and biobanks

Por Lablans, Martin, Kadioglu, Dennis, Muscholl, Marita, Ückert, Frank
Publicado no Orphanet J Rare Dis (2014)

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for I...

Por Scheible, Raphael, Kadioglu, Dennis, Ehl, Stephan, Blum, Marco, Boeker, Martin, Folz, Michael, Grimbacher, Bodo, Göbel, Jens, Klein, Christoph, Nieters, Alexandra, Rusch, Stephan, Kindle, Gerhard, Storf, Holger
Publicado no JMIR Med Inform (2020)