Patient-Reported Outcomes in Huntington Disease: Neuro-QOL and HDQLIFE Physical Function Measures

par Carlozzi, N.E., Ready, R.E., Frank, S., Cella, D., Hahn, E.A., Goodnight, S.M., Schilling, S.G., Boileau, N. R., Dayalu, P.
Publié dans Mov Disord (2017)

A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE End of Life Planning

par Carlozzi, N.E., Hahn, E.A., Frank, S., Perlmutter, J.S., Downing, N.D., McCormack, M.K., Barton, S., Nance, M.A., Schilling, S.G.
Publié dans J Neurol (2017)

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient reported outcomes measurement syste...

par Carlozzi, N.E., Downing, N.R., McCormack, M.K., Schilling, S.G., Perlmutter, J.S., Hahn, E. A., Lai, J.-S., Frank, S., Quaid, K.A., Paulsen, J. S., Cella, D., Goodnight, S.M., Miner, J.A., Nance, M.A.
Publié dans Qual Life Res (2016)

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD)

par Carlozzi, N. E., Schilling, S. G., Lai, J.-S., Paulsen, J. S., Hahn, E. A., Perlmutter, J. S., Ross, C. A., Downing, N. R., Kratz, A. L., McCormack, M. K., Nance, M. A., Quaid, K. A., Stout, J. C., Gershon, R. C., Ready, R. E., Miner, J. A., Barton, S. K., Perlman, S. L., Rao, S. M., Frank, S., Shoulson, I., Marin, H., Geschwind, M. D., Dayalu, P., Goodnight, S. M., Cella, D.
Publié dans Qual Life Res (2016)