Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

Por Springer, Jason Michael, Kermani, Tanaz A, Sreih, Antoine, Shaw, Dianne G, Young, Kalen, Burroughs, Cristina M, Merkel, Peter A
Publicado no J Med Internet Res (2020)

Impact of vasculitis on employment and income

Por Barra, Lillian, Borchin, Renée, Burroughs, Cristina, Casey, George, McAlear, Carol A., Sreih, Antoine, Young, Kalen, Merkel, Peter A., Pagnoux, Christian
Publicado no Clin Exp Rheumatol (2018)

A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment

Por Applequist, Janelle, Burroughs, Cristina, Ramirez, Artemio, Merkel, Peter A., Rothenberg, Marc E., Trapnell, Bruce, Desnick, Robert J., Sahin, Mustafa, Krischer, Jeffrey P.
Publicado no BMC Med Res Methodol (2020)

Diagnostic delays in vasculitis and factors associated with time to diagnosis

Por Sreih, Antoine G., Cronin, Keri, Shaw, Dianne G., Young, Kalen, Burroughs, Cristina, Kullman, Joyce, Machireddy, Kirthi, McAlear, Carol A., Merkel, Peter A.
Publicado no Orphanet J Rare Dis (2021)

Patient involvement in medical research: what patients and physicians learn from each other

Por Young, Kalen, Kaminstein, Dana, Olivos, Ana, Burroughs, Cristina, Castillo-Lee, Celeste, Kullman, Joyce, McAlear, Carol, Shaw, Dianne G., Sreih, Antoine, Casey, George, Merkel, Peter A.
Publicado no Orphanet J Rare Dis (2019)

Harnessing health plan enrollee data to boost membership in patient-powered research networks

Por Chen, Xiaoxue, Agiro, Abiy, Nowell, W. Benjamin, Loud, Sara, McBurney, Robert, Young, Kalen, Sutphen, Rebecca, Bourquardez Clark, Elizabeth, Burroughs, Cristina M., Curtis, Jeffrey R., Sreih, Antoine G., Merkel, Peter A., Haynes, Kevin
Publicado no BMC Health Serv Res (2020)

Data linkages between patient-powered research networks and health plans: a foundation for collaborative research

Por Agiro, Abiy, Chen, Xiaoxue, Eshete, Biruk, Sutphen, Rebecca, Bourquardez Clark, Elizabeth, Burroughs, Cristina M, Nowell, W Benjamin, Curtis, Jeffrey R, Loud, Sara, McBurney, Robert, Merkel, Peter A, Sreih, Antoine G, Young, Kalen, Haynes, Kevin
Publicado no J Am Med Inform Assoc (2019)

Effects of the COVID‐19 Pandemic on Patients Living With Vasculitis

Por Banerjee, Shubhasree, George, Michael, Young, Kalen, Venkatachalam, Shilpa, Gordon, Jennifer, Burroughs, Cristina, Curtis, David, Ferrada, Marcela, Gavigan, Kelly, Grayson, Peter C., Kullman, Joyce, Danila, Maria I., Curtis, Jeffrey R., Shaw, Dianne G., Benjamin Nowell, W., Merkel, Peter A.
Publicado no ACR Open Rheumatol (2020)

Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study

Por Krischer, Jeffrey, Cronholm, Peter F, Burroughs, Cristina, McAlear, Carol A, Borchin, Renee, Easley, Ebony, Davis, Trocon, Kullman, Joyce, Carette, Simon, Khalidi, Nader, Koening, Curry, Langford, Carol A, Monach, Paul, Moreland, Larry, Pagnoux, Christian, Specks, Ulrich, Sreih, Antoine G, Ytterberg, Steven, Merkel, Peter A
Publicado no J Med Internet Res (2017)