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Management of information within Portuguese families with Huntington disease: a transgenerational process for putting the puzzle together
Huntington disease (HD) is a rare progressive neurological disease, with no cure, inherited in an autosomal dominant fashion, significantly impacting family relations, health and well-being. So far, no studies have reported how Portuguese families deal with information about HD, from a transgenerati...
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| Publicado no: | Eur J Hum Genet |
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| Main Authors: | , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Springer International Publishing
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7608350/ https://ncbi.nlm.nih.gov/pubmed/32341469 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-020-0630-z |
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