Llwytho...
Psychosocial Issues in Erythropoietic Protoporphyria- The Perspective of Parents, Children and Young Adults: A Qualitative Study
Erythropoietic protoporphyria (EPP) and X-linked protoporphyria (XLP) are rare photodermatoses, generally presenting in childhood with severe and painful phototoxicity. EPP has been reported to negatively affect quality of life (QoL), but there is limited information on the psychosocial issues faced...
Wedi'i Gadw mewn:
| Cyhoeddwyd yn: | Mol Genet Metab |
|---|---|
| Prif Awduron: | , , , |
| Fformat: | Artigo |
| Iaith: | Inglês |
| Cyhoeddwyd: |
2019
|
| Pynciau: | |
| Mynediad Ar-lein: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6660424/ https://ncbi.nlm.nih.gov/pubmed/30711301 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ymgme.2019.01.023 |
| Tagiau: |
Ychwanegu Tag
Dim Tagiau, Byddwch y cyntaf i dagio'r cofnod hwn!
|