Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure

BACKGROUND: Genomic and biosocial research data about individuals is rapidly proliferating, bringing the potential for novel opportunities for data integration and use. The scale, pace and novelty of these applications raise a number of urgent sociotechnical, ethical and legal questions, including o...

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Detalhes bibliográficos
Publicado no:Hum Genomics
Main Authors: Murtagh, Madeleine J., Blell, Mwenza T., Butters, Olly W., Cowley, Lorraine, Dove, Edward S., Goodman, Alissa, Griggs, Rebecca L., Hall, Alison, Hallowell, Nina, Kumari, Meena, Mangino, Massimo, Maughan, Barbara, Mills, Melinda C., Minion, Joel T., Murphy, Tom, Prior, Gillian, Suderman, Matthew, Ring, Susan M., Rogers, Nina T., Roberts, Stephanie J., Van der Straeten, Catherine, Viney, Will, Wiltshire, Deborah, Wong, Andrew, Walker, Neil, Burton, Paul R.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2018
Assuntos:
Primary Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5918902/
https://ncbi.nlm.nih.gov/pubmed/29695297
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s40246-018-0154-6
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