Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

BACKGROUND: Detecting change in health status over time and ascertaining meaningful changes are critical elements when using health-related quality of life (HRQL) instruments to measure patient-centered outcomes. The PedsQL™ Sickle Cell Disease module, a disease specific HRQL instrument, has previou...

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Bibliografske podrobnosti
izdano v:Health Qual Life Outcomes
Main Authors: Panepinto, Julie A., Paul Scott, J., Badaki-Makun, Oluwakemi, Darbari, Deepika S., Chumpitazi, Corrie E., Airewele, Gladstone E., Ellison, Angela M., Smith-Whitley, Kim, Mahajan, Prashant, Sarnaik, Sharada A., Charles Casper, T, Cook, Larry J., Leonard, Julie, Hulbert, Monica L., Powell, Elizabeth C., Liem, Robert I., Hickey, Robert, Krishnamurti, Lakshmanan, Hillery, Cheryl A., Brousseau, David C.
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2017
Teme:
Research
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5468970/
https://ncbi.nlm.nih.gov/pubmed/28606098
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-017-0700-2
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