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Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease

Although consensus is building that primary (PR) and secondary findings (SF) from genomic research should be offered to participants under some circumstances, data describing (1) actual choices of study participants and (2) factors associated with these choices are limited, hampering study planning....

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Eur J Hum Genet
Main Authors: Fiallos, Katie, Applegate, Carolyn, Mathews, Debra JH, Bollinger, Juli, Bergner, Amanda L, James, Cynthia A
Format: Artigo
Jezik:Inglês
Izdano: Nature Publishing Group 2017
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5437901/
https://ncbi.nlm.nih.gov/pubmed/28272539
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2017.21
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