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Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease
Although consensus is building that primary (PR) and secondary findings (SF) from genomic research should be offered to participants under some circumstances, data describing (1) actual choices of study participants and (2) factors associated with these choices are limited, hampering study planning....
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| Pubblicato in: | Eur J Hum Genet |
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| Autori principali: | , , , , , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
Nature Publishing Group
2017
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5437901/ https://ncbi.nlm.nih.gov/pubmed/28272539 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2017.21 |
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