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Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study
BACKGROUND: In the last ten years, national rare disease networks have been established in France, including national centres of expertise and regional ones, with storage of patient data in a bioinformatics tool. The aim was to contribute to the development and evaluation of health strategies to imp...
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Pubblicato in: | Orphanet J Rare Dis |
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Autori principali: | , , , , , , , , , |
Natura: | Artigo |
Lingua: | Inglês |
Pubblicazione: |
BioMed Central
2017
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Soggetti: | |
Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5437557/ https://ncbi.nlm.nih.gov/pubmed/28526043 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0650-0 |
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