Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study

BACKGROUND: In the last ten years, national rare disease networks have been established in France, including national centres of expertise and regional ones, with storage of patient data in a bioinformatics tool. The aim was to contribute to the development and evaluation of health strategies to imp...

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Bibliografiske detaljer
Udgivet i:Orphanet J Rare Dis
Main Authors: Friedlander, Lisa, Choquet, Rémy, Galliani, Eva, de Chalendar, Myriam, Messiaen, Claude, Ruel, Amélie, Vazquez, Marie-Paule, Berdal, Ariane, Alberti, Corinne, De La Dure Molla, Muriel
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2017
Fag:
Research
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5437557/
https://ncbi.nlm.nih.gov/pubmed/28526043
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0650-0
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