Survey of healthcare experiences of Australian adults living with rare diseases

BACKGROUND: Few studies have examined whether the healthcare needs of people living with rare diseases are being met. This study explores the experiences of Australian adults living with rare diseases in relation to diagnosis, information provision at the time of diagnosis, use of health and support...

Descripción completa

Guardado en:
Detalles Bibliográficos
Publicado en:Orphanet J Rare Dis
Autores principales: Molster, Caron, Urwin, Debra, Di Pietro, Louisa, Fookes, Megan, Petrie, Dianne, van der Laan, Sharon, Dawkins, Hugh
Formato: Artigo
Lenguaje:Inglês
Publicado: BioMed Central 2016
Materias:
Research
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC4806449/
https://ncbi.nlm.nih.gov/pubmed/27012247
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0409-z
Etiquetas: Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!

Ejemplares similares