Hilbert, J. E., Kissel, J. T., Luebbe, E. A., Martens, W. B., McDermott, M. P., Sanders, D. B., . . . Moxley, R. T. (2011). If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD).

Hilbert, James E., John T. Kissel, Elizabeth A. Luebbe, William B. Martens, Michael P. McDermott, Donald B. Sanders, Rabi Tawil, Charles A. Thornton, και Richard T. Moxley. If You Build a Rare Disease Registry, Will They Enroll and Will They Use It? Methods and Data From the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD). 2011.

Hilbert, James E., et al. If You Build a Rare Disease Registry, Will They Enroll and Will They Use It? Methods and Data From the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD). 2011.