The European IPF registry (eurIPFreg): baseline characteristics and survival of patients with idiopathic pulmonary fibrosis

Abstract Background Since 2009, IPF patients across Europe are recruited into the eurIPFreg, providing epidemiological data and biomaterials for translational research. Methods The registry data are based on patient and physician baseline and follow-up questionnaires, comprising 1700 parameters. The...

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Hlavní autoři: Andreas Guenther, Ekaterina Krauss, Silke Tello, Jasmin Wagner, Bettina Paul, Stefan Kuhn, Olga Maurer, Sabine Heinemann, Ulrich Costabel, María Asunción Nieto Barbero, Veronika Müller, Philippe Bonniaud, Carlo Vancheri, Athol Wells, Martina Vasakova, Alberto Pesci, Matteo Sofia, Walter Klepetko, Werner Seeger, Fotios Drakopanagiotakis, Bruno Crestani
Médium: Artigo
Jazyk:Inglês
Vydáno: BMC 2018-07-01
Edice:Respiratory Research
Témata:
Idiopathic pulmonary fibrosis (IPF)
European registry for idiopathic pulmonary fibrosis (eurIPFreg)
Interstitial lung diseases (ILD)
On-line přístup:http://link.springer.com/article/10.1186/s12931-018-0845-5
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