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Designing rare disease care pathways in the Republic of Ireland: a co-operative model
Abstract Background Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high...
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Principais autores: | , , , , , , , , , , , , , , , , |
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Formato: | Artigo |
Idioma: | Inglês |
Publicado em: |
BMC
2022-04-01
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coleção: | Orphanet Journal of Rare Diseases |
Assuntos: | |
Acesso em linha: | https://doi.org/10.1186/s13023-022-02309-6 |
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