Φορτώνει......
The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review
Abstract Background The patient voice is becoming increasingly prominent across all stages of therapeutic innovation. It pervades research domains from funding and recruitment, to translation, care, and support. Advances in genomic technologies have facilitated novel breakthrough therapies, whose gl...
Αποθηκεύτηκε σε:
| Κύριοι συγγραφείς: | , , , , , |
|---|---|
| Μορφή: | Artigo |
| Γλώσσα: | Inglês |
| Έκδοση: |
BMC
2022-04-01
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| Σειρά: | Orphanet Journal of Rare Diseases |
| Θέματα: | |
| Διαθέσιμο Online: | https://doi.org/10.1186/s13023-022-02317-6 |
| Ετικέτες: |
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