Motives of contributing personal data for health research: (non-)participation in a Dutch biobank

Abstract Background Large-scale, centralized data repositories are playing a critical and unprecedented role in fostering innovative health research, leading to new opportunities as well as dilemmas for the medical sciences. Uncovering the reasons as to why citizens do or do not contribute to such r...

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Main Authors: R. Broekstra, E. L. M. Maeckelberghe, J. L. Aris-Meijer, R. P. Stolk, S. Otten
Format: Artigo
Sprog:Inglês
Udgivet: BMC 2020-07-01
Serier:BMC Medical Ethics
Fag:
Biomedical research
Biobanks
Motives
Participation
Non-participation
Risks
Online adgang:http://link.springer.com/article/10.1186/s12910-020-00504-3
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