Returning incidental findings in African genomics research

di Wonkam, Ambroise, de Vries, Jantina
Pubblicato in Nat Genet (2020)

The governance of genomic biobank research in Africa: reframing the regulatory tilt

di Staunton, Ciara, de Vries, Jantina
Pubblicato in J Law Biosci (2020)

“I passed the test!” Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa

di Masiye, Francis, Mayosi, Bongani, de Vries, Jantina
Pubblicato in BMC Med Ethics (2017)

Stigma in African genomics research: Gendered blame, polygamy, ancestry and disease causal beliefs impact on the risk of harm

di de Vries, Jantina, Landouré, Guida, Wonkam, Ambroise
Pubblicato in Soc Sci Med (2020)

Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research

di Thizy, Delphine, Coche, Isabelle, de Vries, Jantina
Pubblicato in Wellcome Open Res (2020)

A scoping review of considerations and practices for benefit sharing in biobanking

di Sudoi, Allan, De Vries, Jantina, Kamuya, Dorcas
Pubblicato in BMC Med Ethics (2021)

"It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-use

di van Schalkwyk, Gerrit, de Vries, Jantina, Moodley, Keymanthri
Pubblicazione 2012

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope

di de Vries, Jantina, Munung, Syntia Nchangwi, Tindana, Paulina
Pubblicato in Am J Bioeth (2016)

Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers

di Munung, Nchangwi Syntia, Mayosi, Bongani M., de Vries, Jantina
Pubblicato in PLoS One (2017)

Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries

di de Vries, Jantina, Stein, Dan J., Kamuya, Dorcas, Singh, Ilina
Pubblicato in Am J Bioeth (2017)

Data Sharing in Genomics – Re-shaping Scientific Practice

di Kaye, Jane, Heeney, Catherine, Hawkins, Naomi, de Vries, Jantina, Boddington, Paula
Pubblicazione 2009

Planning for translational research in genomics

di Hawkins, Naomi, de Vries, Jantina, Boddington, Paula, Kaye, Jane, Heeney, Catherine
Pubblicazione 2009

Ethical implications of the use of whole genome methods in medical research

di Kaye, Jane, Boddington, Paula, de Vries, Jantina, Hawkins, Naomi, Melham, Karen
Pubblicazione 2010

Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?

di Ralefala, Dimpho, Kasule, Mary, Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina
Pubblicato in BMC Med Ethics (2020)

Informed consent in genomic research and biobanking: taking feedback of findings seriously

di Tindana, Paulina, Depuur, Cornelius, de Vries, Jantina, Seeley, Janet, Parker, Michael
Pubblicato in Glob Bioeth (2020)

Systematic Review of the Economic Evaluation of Returning Incidental Findings in Genomic Research

di Fontes Marx, Mayara, Ataguba, John E., de Vries, Jantina, Wonkam, Ambroise
Pubblicato in Front Public Health (2021)

Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees

di Ramsay, Michèle, de Vries, Jantina, Soodyall, Himla, Norris, Shane A, Sankoh, Osman
Pubblicato in Hum Genomics (2014)

Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa

di Heathfield, Laura J., Maistry, Sairita, Martin, Lorna J., Ramesar, Raj, de Vries, Jantina
Pubblicato in BMC Med Ethics (2017)

Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

di Kamga, Karen Kengne, De Vries, Jantina, Nguefack, Seraphin, Munung, Syntia Nchangwi, Wonkam, Ambroise
Pubblicato in Front Neurol (2020)

What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda

di Rutakumwa, Rwamahe, de Vries, Jantina, Parker, Michael, Tindana, Paulina, Mweemba, Oliver, Seeley, Janet
Pubblicato in Glob Bioeth (2019)