Suchergebnisse - Jamie Sullivan

Optimising the emergency-readiness of public access defibrillators across Wales using quality improvement methodology von Susan Goodfellow, Wendy Hardyman, Jamie Sullivan, Julie Starling

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Expediting treatments in the 21st century: orphan drugs and accelerated approvals von Reuben Domike, G. K. Raju, Jamie Sullivan, Annie Kennedy

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The national economic burden of rare disease in the United States in 2019 von Grace Yang, Inna Cintina, Anne Pariser, Elisabeth Oehrlein, Jamie Sullivan, Annie Kennedy

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Common Challenges and Identified Solutions for State Newborn Screening Programs during COVID-19 Pandemic von Dylan Simon, Elizabeth Broadbridge, Mei Baker, Amy Gaviglio, Dorota Gruber, Kimberly Noble Piper, Norma P. Tavakoli, Jamie Sullivan, Annie Kennedy

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Characterizing and quantifying disease impacts of generalized myasthenia gravis (gMG) in the United States: insights from patient and caregiver interviews and surveys von Pushpa Narayanaswami, Jamie Sullivan, Craig Thiele, Christina Ramirez, Susan dosReis, Allison Foss, Karen S. Yee, Mayvis Rebeira, Naila Wahid, Alexis C. Garduno, Elizabeth Crevier, Christine Rowe, Kelly G. Gwathmey

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